I keep wondering where to start. How to begin this journal, how to word it. And realised as I often do. I am overthinking.
My son has a condition called Propionic Acidemia. People often ask me what my day to day life looks like and how we manage it. And a friend pointed out yesterday that writing a blog, not only may help others dealing with this condition/raising someone with it, but may also be quite therapeutic for me. Even if a little self indulgent.
I have been trying to come up with the perfect start to my blog. Something witty and moving and on point. So I have been sitting on this for months. I thought 6 months was a good age. but then time got away from me. I thought his last hospital stay was the right moment. But the energy to put 'pen to paper' wasn't there.
So I am just beginning.
Life is, most of the time, about just starting. It doesn't have to be Monday, or a new year or midnight. Every second is a chance to dive in. So here I am. Diving in.
This is my story of love for the most beautiful boy in the world. I will do, and have done so, things wrong, I will do things out of love. Sometimes I will do things out of exhaustion. And if just one or twenty thousand people read this, I don't mind.
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